Voices from the UK's pulmonary hypertension community
We spoke to over 30 people affected by pulmonary hypertension, some on camera, to discover their personal experiences of the COVID-19 pandemic.
KatieLife is short, and that is exactly what the last couple of years have shown us
SarahThe lack of control is probably what I struggled with most
MarkI wasn’t willing to go back to work and put her in danger
JulieEvery corner I turned during the pandemic was scary, but my specialist centre gave me hope
SindyThe pandemic has made me more aware of having PH and it’s made me feel more scared about my condition
LauraWe took the decision to live apart
AshleyAs the mother of a child with pulmonary hypertension, the beginning of the pandemic was terrifying
Lynette"The pandemic has proved very distressing"
LindaI lost a lot of hope
JayneThe post was disinfected, everything was disinfected
LiamI was petrified of Jayne getting covid and I still am now
JulieIt brought back the fear I had when I was diagnosed with PH
CatiaOur baby came home on the day that regional lockdowns began
AnneWe lived by the rules, as best we could
AdrianI think God looked after us well because of what we were doing
