Voices from the UK's pulmonary hypertension community
Photos, poems, memories and more, submitted by the UK’s pulmonary hypertension community to remember this period of history.
Can I see?
Opening my eyes
Vision, exploring the room
I struggle to breathe
Draining my strength
Nurse collecting my blood
I wonder, how long can I last?
Every hour that passes
The lonely passage
Encouragement all around me
Eventually, the battle won,
NHS – thanks are not enough….
I couldn’t breathe, I walked so slow
So to the doctor I had to go.
You are quite ill, I’ll ring ahead
Go to the hospital, they’ll give you a bed.
That very first night was oh so long
My husband had to leave, it was hard to stay strong.
We’ll take some bloods, scans and a test
You stay in bed, and get lots of rest.
Can I get up, perhaps wash my hair?
Not yet they said, you must stay there.
Groin to heart, the tubes go here
That scared me most and gave me fear.
Okay, so CTEPH is what you have got,
You’ll have some questions, most likely a lot.
Warfarin, leaflets and books, this is what you need
So now go home and have a read.
I put the books into a drawer,
Put my head in the sand and tried to ignore.